Introduction time πŸ‘Έ

So this is abit of a whim setting up this blog even if no-one reads it it’s a place for me to rant & express my new life with a frustrating chronic illness & pretty much the rest of my life too.

I’m Keely I’m 30 I’m mum to Ben who’s 12 (yes I was young) and Jacob who is 10. I’m also a fur mum to whiskaas and tubby (Instagram- tubby_the_maine) both aged 7 😻. Partner to Simon or the man child lol.

So my journey started on the 16th of September with back ache which stopped me from walking well or far which started snow balling very quickly trip to hospital in an ambulance with lack of answers until fybromyalgia was mentioned which I was a walking advert for … felt like my life had been taken from me a life of pain isn’t a life trying to be a mum and a partner just wasn’t working.

A happy medium is beginning to be met now apart from continuous pain, fatigue & the fact a bath knackered me out. Ive found a good doctor who has sorted my meds that i am now having more comfy days than bad days but still not my old life.

I try to blog every day sometimes more than once you lucky ducks i do try to be funny lol & i swear alot wooops lol πŸ˜€

Finally diagnosed March 13th 2018 πŸŽ‰πŸŽ‰

Fibromomma29 πŸ˜šπŸ’œ

 

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One giant step for this momma bear πŸ»πŸ»

So I fed the cat the last pouch we don’t get paided til Monday ish so it’s gunna be real tight I checked the penny pot scrapped enough for a box of food for them but Simon or I didn’t go down I sent the boys down it’s a 5min trip not far no roads to cross Jacob walks further to school and back but it’s the other people I worry about & not the boys I worry if they mess up with money because they don’t pay attention etc & there can be some characters around sometimes I worked there a while ago wow you should of seen some of the sites. The boys did it wonderfully no mess ups no one about couldn’t be prouder of them it’s me who’s the issue lol they’ve both informed me this week they “have hairs in New places ” 😒 goodness me I always fainted when they asked what they were about 12 & 10 bless them. I know I can trust them i gave them a little extra for sweets they didn’t bother. Such a help when Simon or I can’t go down we’ve both been pretty shitty the passed few weeks least neither of us have to push our luck for simple things 😍😍

πŸ’œ one proud fibro momma πŸ’œ

P.s I don’t get out much these days hence the tmi lol

Is it just me

Or is this year flying can’t believe it’s 20th June already 😱😱🀯🀯 mind blown …. sat watching the world cup I swore I wouldn’t watch it I’ve got rather into it lol put it on for me & the eldest to watch and he disappears & I just can’t turn over I loved football when I was younger played alot of it for school teams even trialled at Coventry city couple of times then I found boys and smoking. I was a good little player was thinking of going back to it then I got ill. My boys love to play in the garden keeps them busy for a while.

Shoulders are playing up alot still fibro usually only effected my bottom half but the top is becoming just as bad 😞 I’m gutted about it tbh. Falling apart as of late got a sore on my mouth 2 Infected fingers completely drained finding it unfair that some people can really carry on but I’m floored it’s really unstable and has been for a long time.

Right gunna shoot my phone’s updated and I have no bloody idea how to use it 🀯🀯 lol mind blownπŸ’œ fibro momma πŸ’œ

Sorry for the neglect again πŸ‘…πŸ‘…

Well I had the viral infection for 12 then 2days of a break then on Sunday I got laragitus and croup not diagnosed but I’ve had it so many times lol lost my voice barking like a dog or a sea lion the Mr is on full force with his jokes “what’s that skip little timmys fallen down a well & broke his leg” with my barking πŸ˜†πŸ˜†πŸ˜†πŸ˜† so I’m trying to not use the phone as much because that’s causing great difficulty for my hands πŸ˜”πŸ˜” I’ve not got an infected finger I don’t even bite my nails anymore wtf. Struggling with flares because my body’s fighting so so hard. The Mr isn’t well either so we’ve ordered take out for dinner coz neither of us is well enough to go to the shop. I’m 30 and can’t even carry a bag of shopping home from 5mins away meh. Feeling very down and angry with fibro as of late as it’s just constant non stop infections or flares or just fatigued to shit I slept from 9 til 3.15 today after a full night sleep. Hopefully be back with a nicer post soon.

πŸ’œ fed up fibro momma πŸ’œ

Sorry πŸ˜†πŸ˜†

I’ve not posted for a few days I’ve been so poorly with a viral infection which triggered off a horrendous flare in my shoulders not been able to use my phone for a few days as the pain has been horrific it’s still not 100% . Means not being able to go out any where as I can’t use my crutches. Little one isn’t feel great today he’s woken up crying but he was quite down last night so I don’t know if there’s something he wants to avoid at school. Big ones got a cracking ulcer at the back of his mouth and some inflammation so I think maybe a wisdom tooth trying to pop through bless him being 12 is a nightmare. He’s having more nice Ben days than mean Ben days since his parents evening πŸŽ‰πŸŽ‰ right best shoot as my shoulders are sore today and starting to flare πŸ˜”πŸ˜”πŸ˜”πŸ˜”

πŸ’œ fibro momma πŸ’œ

A new normal

Last night’s parents evening was in a hall all teachers on the outside a square of chairs in the middle a “normal” person will feel no different today from going parents evening ….. someone with fibromyalgia on the other hand there body feels like it’s done an hour in the gym πŸ˜” my feet are so tight , calfs & legs are like lead & jelly all the the same time im very off balance today , I took a bag with a bottle of water not heavy at all feels like I’ve had the heaviest back pack on , my face is indescribable full of the viral infection very snotty & mucusey on the inside thankfully I’m not dripping snot 🀣🀣 my fingers feel sore & tierd. How something I used to do without a care in the world I was dreading yesterday I knew what pain was coming I don’t think the fact I have a viral infection ontop of it is very helpful at all. I’m going to defiantly rest this weekend sleep this week has been rough I was up at 5.45am for no fecking reason today well there was it’s name begins with T and ends in ubby lol he wanted food.

πŸ’œ fibro momma πŸ’œ

Weather & fibro πŸ–€

So I forgot to say a few things about the doctor’s the other day …. I’ve agreed to physio under instruction they DO NOT touch me in worried about that & about being exhausted afterwards but learning excersices wouldn’t hurt I don’t think nor does the doctor. And the other thing was weather my doctor treats quite a few fibro sufferers but I am the ONLY sufferer that is effected by the sun lol the sun for me is on par of being as bad as winter she doesn’t understand as too why this happens as most of us have vitamin d deficiency so the sun is really good for us but not for me it’s not so vitamin d captuales even when it’s hot it is 🀣🀣🀣🀣🀣🀣 still feeling really poorly today dry sore throat I feel really hot yet quite cold β˜€πŸŒ¦πŸŒ¨β˜”β„πŸ”₯

Sing soft kitty to me πŸ™€

Oh my days I feel like actual death this viral infections is being horrible to me sooooo tonight was Bens parents evening 17 teachers & 3.5hours in a hall packed full of people oh the joys when your immune system hates you … So he is an amazing eager to learn polite boy who always thrives for information he’s always asking questions & likes to share his point of view on all subjects the one that shocked me was drama he adores it and even wants to pick it as an option I didn’t think it would be his thing he’s in a play next month playing Oliver’s Mr brownlowe quite a chunk of lines. So very proud of him & how he is thriving we have been made to think other wise but he’s a well regarded member at Harris academy 😍😍.

Got home & everything’s just hit me I feel so bad right now my inhalers gone missing my throat hurts to swallow anything even taking my meds had me crying πŸ˜”πŸ˜” I was really worried about going to the school as my face is covered in spots scabs looks terrible but wowsers the make up was on full coverage today lol will add a picture it’s really shocking.

I need someone to come sing soft kitty rub my belly and feed me food I’ve not had to cook πŸ˜”πŸ˜”