Introduction time πŸ‘Έ

So this is abit of a whim setting up this blog even if no-one reads it it’s a place for me to rant & express my new life with a frustrating chronic illness & pretty much the rest of my life too.

I’m Keely I’m 30 I’m mum to Ben who’s 12 (yes I was young) and Jacob who is 10. I’m also a fur mum to whiskaas and tubby (Instagram- tubby_the_maine) both aged 7 😻. Partner to Simon or the man child lol.

So my journey started on the 16th of September with back ache which stopped me from walking well or far which started snow balling very quickly trip to hospital in an ambulance with lack of answers until fybromyalgia was mentioned which I was a walking advert for … felt like my life had been taken from me a life of pain isn’t a life trying to be a mum and a partner just wasn’t working.

A happy medium is beginning to be met now apart from continuous pain, fatigue & the fact a bath knackered me out. Ive found a good doctor who has sorted my meds that i am now having more comfy days than bad days but still not my old life.

I try to blog every day sometimes more than once you lucky ducks i do try to be funny lol & i swear alot wooops lol πŸ˜€

Finally diagnosed March 13th 2018 πŸŽ‰πŸŽ‰

Fibromomma29 πŸ˜šπŸ’œ

 

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It’s not just fibro πŸ’ͺ

So I had my scan on my shoulder i looked at him and said “please tell me there’s something wrong please” yep there is something wrong it isn’t tendonitis but it is bursitis which is the swollen bursa in between the shoulder & Rota cuff (I think without looking on google) he doesn’t know the plan of attack as he was unsure as to what treatment is which is fine he’s not a doctor but I’m pleased it’s something even if it means doing what I’m doing. There is a chance of it getting infected & needing an op but that worse come to the worst.

Booked in to see my angel doctor on 28th so the day I’m due meds & the day before the hen do. I’m hoping I can get her to bump the meds up slightly I’m taking less morphine due to how small the bottles are so not even doing the full amounts.

Today’s been a mixer of good & bads …. the bad bit being my legs being a nightmare while shopping my foot swelled up felt rough as billyoh …. good bit I was in a pretty good mood tbh which wasn’t being flattened by the pain I did get back into bed for a while watched a couple of films etc.

Even had a little bit of self care too 😁😁😁

πŸ’œ fibro momma πŸ’œ

I swear i would be lost without …

My grandparents crikey seriously I would be a fat fucking mess. So today I had a phone call of a unknown number which I never answer but had a feeling might be a school lol but it was the hospital they have a spot on Sunday for my shoulder scan (it’s feeling a little better today but I’ve used both crutches so prob a flare up tomorrow) a scan on a Sunday hopefully be in & out πŸ˜ƒπŸ˜ƒπŸ˜ƒ well the cars fucked the alternater has gone it has been fixed but something’s not right so no idea any way super grandparents are picking us up we will eat lunch at there’s then grandad drop me hospital probably go home then come back and get me then drop us back off again I had zero other option to ask unfortunately it was them or nothing thank goodness they were free that day πŸ™πŸ™ I would be really nothing without them. Since I was 17 they raised me while I was a mess from a domestic violence relationship at 23weeks pregnant i was a scared child carrying a child. Mine and grandma’s relationship has always been pretty solid mine and grandads a little more rocky but he’s been so much better in the last few years 😁😁😁

Will write an update soon when the scan results are in 😍😍

πŸ’œ fibro momma πŸ’œ

Big bad world πŸŒ

Crikey I went out again what is going on 😱😱 so went grandma’s today despite feeling rough as sandpaper. Saw my baby for a bit fed him he’s getting a big boy now πŸ¦†πŸ¦† he still can’t fly yet can’t wait til he can he may actually let me pet him lol.

So while eating dinner grandma mentioned she needed to go to the farm shop. She used to take us when we were small to pick fresh fruit just for abit of fun when we stayed over. It burnt down but has been ‘re built it’s massive now so we grabbed her bits & had a coffee was nice to be out but I had to force my self back into that car. Had pain killers and a lay down while we all giggled at carry on matron (bunn ward – oven ward) πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚.

Went to see my boy again lol Ben loves feeding him and someone else throwing bread at the big ducks as they know hewbert is a favourite so some stay back to try pinch his bread 🀣🀣 clever ducks.

I needed a few tops for this hen do as I own zero smart tops what so ever so raided grandma’s wardrobes well 3 of them didn’t get to the last one πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚ multipul tops I liked it was if I didn’t look like a bag of shit πŸ’© settled on 2 out of 7. I ain’t leaving looking good so old faithful batman top will do that job 🀣🀣🀣 I am absolutly done now I want a good night sleep & A lay in would also be fab. Had the tens machine in for about 6hours then took it off for a break. I’m finding it rough right now I’m pushing so hard to be able to do normal things it’s unreal but if I didn’t we would have piles of laundry … floor would be do bad you would wipe your feet on the way out … washing up well paper plates it would end up im sure & as for cooking we would always find something to do we are hungry alot lol. But you get my drift. I’m tierd fed up and worried.

Anyway πŸ––

πŸ’œ fibro momma πŸ’œ

Fibro update πŸ’œπŸ₯„

So flaring like fuck both knees so stairs and standing from sitting is a nightmare …. shoulders are hell left more than right can hardly move hence the **rant post** I need love & support & not to be left to do everything. boys have been back at school this week guess who’s done every 6.40am wake up .. yep .. you got it right me as per always I’m struggling alot more than I care to admit.

I hopefully get my crutches this week elbow crutches so more weight is taken on the forearm than the shoulder I want to start getting out abit more. My back has also really kicked off this week. Next Sunday will mark 365days of hell it’s been a long year learning new ways of doing things ….sleeping lots …. learning mentally as well as emotionally & physically .. gaining stone.. losing my mobility. It’s been a mega mega year I knew the day would come I always said from 15 “I will be in a chair by 30” and it’s not far off of these crutches don’t work that’s it it will be a wheel chair. I’m getting some inheritance soon & I’ve planned a visit to the mobility shop in rugby to put some of the money to good use.

πŸ’œ fibro momma πŸ’œ

My Insta name has change

@sleepingspoonie

A rant 😑

Don’t you find it annoying when someone uses the bubble bath & doesn’t put it back

Or a toilet roll tube “what’s 4” and pisses off women 🀣🀣🀣 never puts in the bin which is right infront of him 😑😑

When you wash someone’s clothes but theyve stained it so bad it won’t come out but it’s not there fault

Who can’t put anything where it’s supposed to be …. but hey at 45 I wouldn’t think they could right. It’s really got to me this week I’ve got a stinking shoulder flare so of course today when i shouldnt have done I’ve put washing in washed up folded and put washing away hoovered cooked dinner sorted stuff out for hen night sorted stuff for grandma’s tomorrow (clothes meds etc) fed up of doing shit other people are more than capable of yes he has a trapped nerve which is very painful (I get that) but come on put stuff in the bin ffs it’s the little things that are really pissing me off lately really badly both knees are flaring both shoulders are I feel stiff all over. I know I’m not the only one that gets driven mad by. Ugh lol

πŸ’œ fibro momma πŸ’œ

I actually went out today πŸ˜±πŸ˜±

So yesterday was awful had stupid back spasms that were exhausting… I already had plans for today tho with grandma grandad and Ben (Jacob didn’t want to go) we went for lunch at a pub the meals were on a special menu there was some really popular dishes for just 4.99 & pudding was a Β£1 off a special board at the bar. I love having steak when I go out but it’s usually really expensive well there was a 6oz steak chips peas & salad (me and grandma shared a few onion rings too) the steak was stunning I like mine dead well very well done It can be quite chewy & tough but it was beautifully cooked and we just had to take the chance of a pudding I had chocolate fudge cake with a nice dolup of ice cream. It was a very satisfying amount of food. We went back to grandma’s where I made the “hewbert” update video 😍😍 we had a coffee & then I just had 2 sleep my eyes were hurting slept for a good few hours we had to leave a little early as Jacob’s back to school tomorrow so it was haircut tonight & for Ben too but he’s not back til Wednesday which he’s just thrilled about. I plan on sleeping & resting I should be asleep now as I will be up soon but oh no I’m wide awake lol always the way. Done my 10 min stretch out but it’s hurting me despite them being done to help just to stretch things out. Right sleep well or have a good depending on your time zones lol.

πŸ’œ fibro momma πŸ’œ

πŸ¦† duck update πŸ˜πŸ¦†

So a little while ago I wrote about a duck whom I named Hewbert 😍 well every time I call him he comes swimming over usually quacking lol he didn’t today tho. So I record hewbert after I called him it’s the most adorable thing you will see grandma is still shocked that he does this still. Apart from Saturday I won’t see him til October so I will record him after then to see if he remembers me. You can see none of the other ducks give a shit lol my clever duckie πŸ˜πŸ˜πŸ¦†πŸ¦†